Our Daughter was born with Towns Brock syndrome, a very rare syndrome. We all were in shock and scared when we found out. Tori, has many different medical issues that run with this syndrome, including small kidneys, lung issues,hearning loss, heart problems, a brain shunt, small for her age, learning disabilities, and more that we will learn as time goes on. With towns Brock being so rare it's a learning game for us and all her doctors. We just have to live day to day.
The reason why this foundation is so important to us is because, I don't know were we would be if we didn't have the U of M childrens clinics or hospital. We have had the best doctors, nurses and staff that we could ask for. They are very caring and understanding and helping any way they can. They make every thing so kid friendly and make everything around the kids. They have help us so much through this journey that we are on.
By fundraising for the U of M childrens hospital and clinics, I hoping that they can do more study's on Towns Brock syndrome. To help family's like ours know more about this rare syndrome and out our out come will be.