Benefits: "I Refuse EB" Fund for Epidermolysis Bullosa Research
Goal $ 10,000.00
65.4% towards our goal
DONOR LIST
Anonymous
$ 500.00
Vanector
$ 100.00
We love y'all! Happy bday Luke!
Anonymous
$ 100.00
Anonymous
$ 25.00
Anonymous
$ 10.00
Shannon Wilder
$ 100.00
Kim Whitney
$ 25.00
Morfar, Linda, And Scarlett
$ 250.00
Happy Birthday, Luke!
Sarah Yosai
$ 50.00
This little cutie patootie is constantly bringing a smile to my face. His family is like my own and they all deserve the best. I LOVE YOU LUKE!!
Hiroki/Terrie/Seara/Elia Y.
$ 50.00
Way to go! Team Luke!
Hayley
$ 20.00
Cerita
$ 100.00
We love you guys!
Anonymous
$ 1,000.00
Anonymous
$ 150.00
Laurie & Robyn Orenstein
$ 50.00
Happy Birthday Luke!!!
Anonymous
$ 50.00
Anonymous
$ 100.00
Jennifer Fisher
$ 25.00
This is for you sweet Luke!!!!
Anonymous
$ 15.00
The Whitakers
$ 40.00
Keep on killin it, Luke!!
Annie Perkins
$ 10.00
Kristen
$ 25.00
Happy birthday Luke! Your mama is a shining light and so glad to contribute to finding a cure!
The Hodgson Family
$ 50.00
May this small gift work in a big way. Happy birthday Luke, wishing you many more. We love you
Anonymous
$ 50.00
Anonymous
$ 250.00
Anonymous
$ 50.00
Szilvia
$ 35.00
Anonymous
$ 50.00
The Wikum Family
$ 100.00
Happy Birthday Luke! We love you, you happy little man! I hope we find a cure for you soon.
Anonymous
$ 10.00
The Taylor Family
$ 10.00
Happy Birthday Luke! Prayers to you and your Family Luke! Hope a cure is found soon!
Anonymous
$ 50.00
Anonymous
$ 50.00
Anonymous
$ 50.00
Anonymous
$ 200.00
The Warth Family
$ 25.00
Happy Birthday little Luke, we love you and hope for the very brightest future for you! Let's kick this things butt!!
Uncle Jerry & Aunt Jeanette
$ 200.00
I dream that a cure can be found for EB soon!!
Kent And Loni Ketterman
$ 250.00
Happy Birthday, Luke! We hope that someday soon EB will be history.
Nikki Kinowski
$ 30.00
Happy birthday Luke. lets make sure we can keep seeing that sweet smile
The Kyle Family
$ 25.00
Happy belated birthday, Luke!!
Leena And Tom
$ 50.00
Happy Birthday Luke!
Anonymous
$ 150.00
Jasmine Oelckers
$ 100.00
We're team Luke!
Linda
$ 40.00
Halfway there!
Anonymous
$ 50.00
Anonymous
$ 100.00
Cyndi And Jameson
$ 100.00
Happy Birthday Luke!
Anonymous
$ 20.00
Anonymous
$ 1,000.00
Anonymous
$ 40.00
Daisy
$ 40.00
❤️❤️❤️
[Stop]
$ 6,540.00 raised
Give Now Create your own page

Our son Luke was born on June 23rd, 2016, and we were smitten.  He slept in my arms at the hospital that night, and everything seemed perfect.  The next morning we awoke and he had blisters on his elbows, knees, ankles, fingers and mouth.  The pediatrician had never seen anything like it, he went to do a little research and came back with a print out about EB.  Luke was transferred to Rady Children’s in San Diego, where it was confirmed with a genetic test that he has recessive dystrophic epidermolysis bullosa or EB for short.  

RDEB is a genetically inherited disease that takes 2 parents who are carriers of a recessive mutation of the collagen VII gene, a critical component for the 'glue' that holds your skin on your body.  Luke can blister or have his skin sheer off from mild to moderate friction.  Places that have alreay wounded, are more sensitive and fragile than other.

Over the course of his first year of life, Luke has had blisters on his body that range in size from a pea to an orange.  We have used 300+ sterile needles to lance blisters.  He already has scarring, and has lost some toenails.  His Mom, Christina, is his primary care taker.  Luke has to be wrapped in special bandages every other day to protect his fragile skin, and we have to spot check him daily for new blisters, incase he has one that needs to be lanced before it spreads.  His most problematic areas are his mouth, hands and forhead.

Despite all of this, Luke is one of the happiest babies ever!  He's curious and goofy. He cruises along the furniture and crawls all over the house getting into everything he can!  He dances and claps and babbles, and makes a hilariously serious 'stink' face.  Luke will be 1 year old on June 23rd, and all he wants for his birthday is to find a cure for EB.  He has everything else a kid could want, toys, books, clothes and a loving family.  

Please consider donating to TEAM Luke!  We've appreciated the fantastic, loving support of all our friends and family this past year.  Without all of the people who have reached out to us, I'm not sure where we'd be.  It's been a hard year, but also one filled with a lot of joy.  What keeps us going is hope.  Please help give us some hope for the future for Luke, and all of the 'butterfly' children like him.

Help spread the word

Please help us and let your friends, colleagues and followers know about our page: